Life...
Life, unfortunately, isn't usually fair. Nothing could be more true for Charlotte. This little girl has had to fight since she was born and still will probably never have a completely "normal" life. Just in case anyone isn't aware, my girl was born with severe macrocytic lymphatic malformation. Her abdomen literally looked like one of those starving children you see on those commercials begging for money. She spent a week in the NICU here in Jacksonville before being transferred to Orlando for 7 more weeks. We finally got her home with a feeding tube and on 5 or 6 medications the day before her 2 month birthday. We have seen five specialists at least and we still have to follow up with 2 on a regular basis. We're finally down to two meds...one that I'm fully compliant with...if I'm going to be honest...and we finally were able to start her at an at-home daycare last week. Working full time, even from home, and trying to find people to help out with your ki