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Showing posts from March, 2015

Somethings people should know...

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  So, if I haven't said it yet, my world has been turned upside down. A minimum of 10 hours a day are spent related to feeding my child between my husband and I. I've had to replace an NG tube twice, replace the tape holding it down another time...almost as fun. I've held my daughter down for blood draws...which will be a bi-weekly thing for a while and then monthly...and shots. I've been utterly exhausted from not being able to do much of anything outside of taking care of Charlotte because of all of her doctor appointments, medicines, and lengthy feedings. I worry that people are going to think I don't care about my child's pain because I don't get upset or emotional when she's screaming and crying. Please know that's just because I've had to deal with it so much in her short life that God has given me the strength to get through it. I've screamed and cried over how unfair my life has become! However, I was brought back down to Earth wh

New "Normal"

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So, we finally got our newest Andrews home on Friday evening! It has been quite the adjustment. Again, I'd like to say that I am not looking for any sympathy, but I think a lot of us see parents of special needs kids and think, "Wow, that's got to be tough...I could never handle that!" At least I know I did. My special needs kiddo will most likely not be special needs past a few years, but it's going to be a rough few years. My special needs kiddo is thankfully still mostly "normal"...and I can't express how grateful I am for that enough! However, I do think that sometimes, it's nice to let others know what all can be involved in taking care of a special needs kid...not for sympathy, but just because people should know. My new routine has made me feel like I should go to nursing school lol. Charlotte has a feeding tube as she stopped eating while still in the hospital. They really aren't sure why, but she slowly ate less and less. As